Muscular Dystrophy Association – MDA
US National – Telecommute
SCIENTIFIC PORTFOLIO DIRECTOR IN REMOTE AT MUSCULAR DYSTROPHY ASSOCIATION
Employee Type:F ? Full Time
A Scientific Portfolio Director (SPD) is an experienced professional with the ability to work for a dynamic, fast-paced organization. The SPD directs a portfolio of mechanistic and translational research awards in neuromuscular disease areas including the muscular dystrophies; motor neuron diseases; and neuromuscular junction disorders, inherited peripheral nerve disorders; congenital, metabolic and inflammatory myopathies, and channelopathies. This person will identify and address key research needs and initiate and implement high-impact research and scientific opportunities in neuromuscular diseases and demonstrate the effectiveness and impact of MDA’s research activities for patients, families, donors, and the professional communities MDA serves. Additionally, this person will provide leadership for MDA through interactions with federal agencies, international neuromuscular disease partners, drug development groups and pharma, as well as with patient advocacy groups and other neuromuscular disease stakeholders while meeting our core standards of excellence. The SPD reports to the Senior Vice President- Scientific Program Director and works closely with MDA’s Advocacy, Health Care Services, Medical Education and Healthcare Partnership teams to further leverage MDA’s clinical and research programs and infrastructure to accelerate therapy development for neuromuscular diseases.
1. Strategic Direction of Grant Programs
Provide specialized scientific expertise to MDA in a particular portfolio of diseases
Develop and direct a robust and diverse portfolio of grants that align with MDA’s strategic research priorities.
Provide continued analysis of grant portfolios and guidance toward achieving MDA’s strategic research efforts.
Interact with the neuromuscular community to assess research needs and opportunities.
Serve as a disease expert in identifying appropriate scientific reviewers for all grant applications, recommend grants which may be the most impactful for achieving MDA’s mission.
Prepare grant summaries and portfolio analyses
Provide guidance to grantees and grant applicants around scientific grant issues, and work with Chief Research Officer and the rest of the scientific team on establishing and revising grant policies and procedures.
Track grantee’s scientific progress, publications and patent/licensing activity.
Organize, attend and participate in all grant review meetings for MDA’s research grant programs.
Address the specific needs of the MDA Venture Philanthropy program
Work collaboratively with the other SPD’s on the team
2. Provide Scientific Guidance for MDA
Provide support to MDA advocacy and health care services initiatives that together comprise the MDA Mission Leadership Team
Provide research news updates for dissemination through online and social media channels to keep the community informed of ongoing research and drug development and allow for MDA’s impact to be fully promoted.
Provide scientific guidance and review for all disease-specific and research-oriented print and webpage content.
Provide scientific guidance and participate in collaborative advocacy efforts between MDA and other patient-advocacy organizations.
Identify opportunities for MDA to attract new sponsors/supporters, develop these relationships, and act as a resource for scientific material.
Address scientific, research, and disease-specific questions that come in through the Resource Center.
Develop content and co-lead the annual MDA Conference
Develop or participate in MDA webinars as appropriate, to convey the scientific/medical background or importance of MDA’s efforts.
Provide scientific guidance and input for MDA MOVR. These activities may include analys…
Nonprofit & Philanthropy , Research , Science , Project Management